| Stella Journal, vol. 1 |
It all began when I went in for my regularly scheduled ultrasound on Wednesday, October 2, 2013. It was just a little over 20 weeks. I wasn't in a hurry to get in for the ultrasound since we were not planning on finding out the gender of the little one, so it was nice and calm. I had asked Brenda, my mother-in-law if she wanted to be there, so she met me up there. I was excited and anxious to see the little one. As we were chatting with the tech, Ambree, we soon realized that she was the roommate of Pret's lead charge nurse and our good friend, Naomi (yes, there is a correlation between her name and our daughter's...). It was fun to connect with her. As she was going, she pointed out to us that the baby was breech and wedged way down into my pelvis, which I had already realized. Because of that, though, Ambree was not able to get a good view of the lower part of her abdomen. She was pointing out a few other things, but I was pretty oblivious to any concerns that she may have been having. At one point she left the room to go talk with the radiologist, but I didn't think much of it. I remember calling Pret after and letting him know that there were 10 fingers and 10 toes, but that they couldn't see the bladder, etc. He wasn't concerned at the time, either.
Friday, I got a call from my midwives' office. My midwife let me know that during the ultrasound they had noticed some ascieties in the baby's abdomen. She tried to explain that it was a pocket of fluid that shouldn't be there. That, with the combined problems of not being able to see the cord insertion point and bladder, made it that they wanted me to go get a second ultrasound done at a Maternal Fetal Medicine clinic, which specializes in high-risk pregnancies. She didn't make it seem all that urgent, but that I should try to get in there as soon as possible. I called the MFM clinic and from what I had grasped, it wasn't so important that I needed to take a day off work or anything, so the soonest they could get me in was the week after Monday. I called Pret and let him know what was going on. Following our general personalities, he was more stressed than I was about the situation. It just so happened that Ambree, completely out of the ordinary, was at the hospital where Pret worked that day and went to go visit Naomi. Pret saw her and immediately asked her about what she had seen on the ultrasound. She gave a few more details about it and Pret immediately started looking up what ascieties could indicate.
He found that it could be an indication of a few different pretty major things; Down Syndrome, Trisomy, and Cystic Fibrosis to name a few. He called me later to let me know that he was really worried. He wanted to try to get in sooner, but I couldn't really do anything about it. Needless to say, we spent the next 10 days worrying and praying quite a bit.
We were pretty nervous going to the doctor that day, Monday, October 14th. I don't even remember why she was here, now, but Melanie had come up for the weekend and we asked her to come with us to the appointment, just to have another knowledgeable person there and for support.
They started with some introductions. The doctor we met on that day was Cara Hueser. She is a professional pole dancer as well as being a MFM certified OB. When I told my dad her name later that day, he let me know that he had met her at a concert of my cousin's band, MINX, a few years before and had photographed her. Kind of a different turn of events. Anyway, we also met the genetic counselor and another doctor that was doing some training.
They wanted to start out by doing the ultrasound and then they would go from there. As the did it, they started to see the same things that we had seen before. It was nice, though, to have someone pointing out what was seen. The first things that the tech pointed out that were abnormal were the kidneys. They were enlarged and misshapen. It was also very difficult to see the ureters and we still couldn't see the genital area. They looked for fluid in other areas--around the brain and the heart and other places, but they thankfully didn't see any. They could see all four chamber of the heart and the heartbeat was mostly strong (there were a few murmurers, so they recommended me go see a fetal cardiologist). The lungs looked ok as well. At that time, there was also plenty of amniotic fluid.
All of those things left the doctor pretty baffled. She didn't feel comfortable giving a diagnosis at that point. She recommended that she take the case to her team, have them discuss it and then they would get back to us. Also, to have some discussions with the genetic counselor to see what she might recommend.
He found that it could be an indication of a few different pretty major things; Down Syndrome, Trisomy, and Cystic Fibrosis to name a few. He called me later to let me know that he was really worried. He wanted to try to get in sooner, but I couldn't really do anything about it. Needless to say, we spent the next 10 days worrying and praying quite a bit.
We were pretty nervous going to the doctor that day, Monday, October 14th. I don't even remember why she was here, now, but Melanie had come up for the weekend and we asked her to come with us to the appointment, just to have another knowledgeable person there and for support.
They started with some introductions. The doctor we met on that day was Cara Hueser. She is a professional pole dancer as well as being a MFM certified OB. When I told my dad her name later that day, he let me know that he had met her at a concert of my cousin's band, MINX, a few years before and had photographed her. Kind of a different turn of events. Anyway, we also met the genetic counselor and another doctor that was doing some training.
They wanted to start out by doing the ultrasound and then they would go from there. As the did it, they started to see the same things that we had seen before. It was nice, though, to have someone pointing out what was seen. The first things that the tech pointed out that were abnormal were the kidneys. They were enlarged and misshapen. It was also very difficult to see the ureters and we still couldn't see the genital area. They looked for fluid in other areas--around the brain and the heart and other places, but they thankfully didn't see any. They could see all four chamber of the heart and the heartbeat was mostly strong (there were a few murmurers, so they recommended me go see a fetal cardiologist). The lungs looked ok as well. At that time, there was also plenty of amniotic fluid.
All of those things left the doctor pretty baffled. She didn't feel comfortable giving a diagnosis at that point. She recommended that she take the case to her team, have them discuss it and then they would get back to us. Also, to have some discussions with the genetic counselor to see what she might recommend.
We ultimately decided to do an amniocentesis to see if we could get any genetic clues to help with a diagnosis. That was a really hard decision for me/us to make. I had heard that amniocentesises could cause mis-carriages, were not comfortable for the baby, there was risk of hurting the baby, etc. In the end, though, we knew we needed to determine what was wrong and this was the next big step. It was not a fun procedure. Even at that 22 weeks, when the needle (which was HUGE, I was definitely not a fan!) was inserted (they use ultrasound to direct the needle to the correct place, so we were able to watch the whole procedure. I'm not sure I should have done that-it ended up being one of the most traumatizing things of the entire diagnostic/delivery process!!) hit my amniotic sac, the baby reacted and its hand popped up like it was raising its hand to ask a question. It definitely proved to me that babies that young can feel things and have the mental brainwaves to process discomfort.
Everything ended up being fine with the pregnancy after the amniocentesis, but I was still a little on edge for the next few days. In fact, that is when I first started my journal to document this long journey because I had the feeling that things were going to be a bit crazy. Blogs were all the rage at this point, and I knew that it helped me to get things out in writing, so I started documenting in a journal things related to this pregnancy.
As I read through it this morning, I am realizing that the first thing was a blessing that Pret and Dan (my father-in-law) gave me that night. It let me know that Heavenly Father was very aware of the situation we were in and that we would eventually find out His will, but that details were not to be revealed at this time (this was brought up two times!). I was promised that I would not be harmed in the delivery of this baby; even that I would be blessed with an assurity and spiritual comfort of Heavenly Father's will. I would also be blessed against Satan's attacks of fear. God's perfection and plan would be made known to us through this experience. Also, Lilly is promised strength and miracles in her life because of the baby. I was blessed with a gift of faith, even through referencing my Patriarchal Blessing, that will help me love and bless others in the future. Also, the Holy Ghost would prompt ideas and thoughts that will help family and friends in the accepting of Heavenly Father's will. This child will have a special purpose and destiny--through prayer we will have a better understanding of the Plan of Salvation. I was blessed with patience and protection; stability as I connect with Heavenly Father and move forward with faith. I was blessed that the baby would radiate through me and be a gift to others.
Reading back on that, it is amazing to see how that blessing has played out. What an amazing gift the priesthood is in my life.
After the amniocentesis, they told us they would have the results in the next few weeks. I remember I was at work when the geneticist called and I had to call her back on my lunch break. She let me know that there were NO genetic abnormalities. We were shocked! What in the world was causing the ascieties and other problems? She asked whether I wanted to know the gender and I gave in! She let me know that it was a little girl. That was crazy. We would have to start thinking of little girl names!




